You just got the diagnosis. Now what?
This is the app I wish someone had handed me in 1999. Everything a new celiac needs, in one place, in plain English. And in Spanish where it counts.
Start anywhere. Most people start with the first 30 days, then keep the decoder in their pocket for the grocery store.
You did not lose your food. You lost the food that was hurting you. There is a difference, and one day you will feel it.Steffi
Free: the Clean House ebook
My guide to clearing out what does not belong, in your kitchen and in your body. Send it to me and I will send you the book.
This app is education, not medical advice. I am a Nutritional Herbalist and a wellness educator, not a doctor. Nothing here diagnoses, treats, cures, or prevents any disease. Celiac disease is a serious autoimmune condition. Get properly tested BEFORE you go gluten-free, and work with your gastroenterologist or physician on your care.
Ingredients and formulas change without warning. Always read the label yourself, every single time, even on a product you have bought a hundred times. When in doubt, leave it out.
Some links in this app are affiliate links. If you buy through them, I may earn a small commission at no extra cost to you. It helps keep Celiac Shack running.
Faith over fear. Joy over restriction.Start here
Your first 30 days
You do not need to learn everything today. You need to get through this week. Check things off as you go. Your progress saves on this device.
Week one. Get gluten out.
This week is not about doing it beautifully. It is about doing it. You will be tired, you may feel worse before you feel better, and that is normal. Your gut has been under attack. Healing is not instant.
Week two. Protect your kitchen.
Most people who "cannot figure out why they still feel awful" are getting glutened at home. Not at restaurants. At home. Fix this week and you fix the biggest leak.
Week three. Go back out into the world.
You are going to eat out again. You are going to travel again. You will just do it with a plan.
Week four. Start healing on purpose.
Removing gluten stops the damage. It does not automatically rebuild what was lost. Celiac disease is a malabsorption disease, and after years of a damaged gut lining most people are running low on something.
A word about week two
Somewhere in the second week a lot of people crash. Headaches, fog, exhaustion, crankiness, a genuine grief over bread. It is real and it passes. Your body is recalibrating after years of running on inflammation.
Do not decide whether this is working in week two. Decide in month three.
Steffi
Safe foods
What you CAN eat
Here is the good news nobody leads with. The center of the grocery store is mostly off limits, but the outside walls are almost entirely yours.
Naturally gluten-free, no label needed
Meat, fish, eggs
Plain fresh beef, lamb, chicken, turkey, and fish. Eggs. Anything unseasoned and unprocessed. Verify once it is marinated, breaded, brined, seasoned, self-basting, or from a deli counter.
Produce
All fresh fruit and all fresh vegetables. Plain frozen too. Verify anything with a sauce or seasoning packet in the bag.
Grains and starches that are safe
- Rice, including jasmine, basmati, brown, and wild rice
- Quinoa
- Millet
- Buckwheat (it is not wheat, the name lies)
- Sorghum
- Amaranth
- Teff
- Corn, cornmeal, polenta, grits, cornstarch
- Potato and potato starch
- Cassava, tapioca, arrowroot
- Certified gluten-free oats, with a caveat below
Legumes, nuts, seeds
Beans, lentils, chickpeas, peas. Nuts and seeds in their plain form. Nut and seed flours: almond, coconut, chickpea. Verify anything roasted in a seasoning or processed in a shared facility.
Dairy
Plain milk, plain yogurt, butter, hard cheeses. Verify flavored yogurt, shredded cheese with anti-caking agents, and anything labeled a cheese product.
A note on lactose. A lot of newly diagnosed celiacs cannot handle dairy at first, because the enzyme that digests lactose lives on the very tips of the villi that celiac damages. This is often temporary. Pull dairy for a while, heal, and try again later.
Fats, sweeteners, extras
Olive oil, avocado oil, coconut oil, butter. Honey, maple syrup, molasses, plain sugar. Salt, plain single-ingredient herbs and spices. Coconut aminos in place of soy sauce. Distilled vinegars, but never malt vinegar.
Reading a label in ten seconds
- Jump to the bottom first. In the United States the "Contains" line lists wheat by law. If it says wheat, you are done.
- Scan for the four words. Wheat, barley, rye, malt. Malt is the one people miss, and it hides in cereal, chocolate, and vinegar.
- Then look at the front. A certification seal is your fastest yes.
Which seals actually mean something
Certified is stronger than labeled
GFCO (Gluten-Free Certification Organization) tests to 10 parts per million, stricter than the legal standard. The circled GF seal.
Certified by GIG or NSF are also third-party verified programs worth trusting.
The Crossed Grain symbol is the European and UK mark, run through national coeliac societies.
Plain "gluten-free" on the package is a legal claim, not a certification. In the US, EU, UK, Canada, and Australia it means under 20 parts per million. That is genuinely safe for the vast majority of celiacs. It just has not been independently verified.
"Wheat-free" means nothing to you. Barley and rye are not wheat. Spelt IS wheat. Do not let that label fool you.
"Made in a facility that also processes wheat" is a voluntary statement with no legal definition. Some careful companies say it. Some careless companies do not. Judge by the certification, not the warning.
A word on the gluten-free aisle
You do not have to buy any of it. The specialty aisle is expensive, the products are mostly white rice flour and tapioca starch, and they are usually lower in fiber and protein than what they replace. They are a nice occasional thing, not a foundation.
Build your diet on food. Use the products for birthdays.
Signature tool
Hidden gluten decoder
Type any ingredient, brand term, or object. Get a straight answer and the reason behind it.
Cross-contact
Kitchen safety
If you are still not feeling right after three months, look here before you look anywhere else. Home is where most people are getting glutened, and they have no idea.
Replace these. No negotiating.
- The toaster. Crumbs are baked into every surface and no cleaning gets them out. Get your own, or use toaster bags at minimum.
- Wooden spoons, wooden boards, wooden bowls. Wood is porous. Gluten proteins sit in the grain.
- Scratched nonstick pans and scratched plastic. Every scratch is a hiding place.
- The colander. You will never get pasta residue out of those little holes. Not ever.
- Cast iron used for gluten. Unless you strip it to bare metal and re-season it, start fresh.
- Silicone bakeware and pastry brushes that have been used with wheat flour.
- Shared condiment jars. Or convert everything to squeeze bottles.
These are fine to share, cleaned normally
- Stainless steel pots, pans, and utensils
- Glass, ceramic, and smooth stoneware
- Plates, cups, and cutlery through a normal dishwasher
- The oven itself, if you cover your food and use your own pans
- The refrigerator, with your food on the top shelf and covered
- Countertops, wiped down before you work
Six habits that fix most of it
1. Top shelf, always
Fridge and pantry. Gravity is not on your side. Crumbs and drips only fall down.
2. Yours gets made first
Clean counter, clean hands, clean board, your food first. Then everyone else's. This single habit removes a huge amount of risk.
3. Treat wheat flour like paint dust
Flour goes airborne and stays suspended for hours before it settles on everything. If someone is baking with wheat flour, leave the room, cover your food, and wipe the counters afterward.
4. Never share the frying oil
A shared fryer is a shared fryer. Fries cooked in the same oil as breaded food are not gluten-free, no matter how nice the server is about it.
5. Label your things
Masking tape and a marker. A label is a boundary the whole family can see. It is not about trust, it is about tired people at 6pm.
6. Wash hands, and skip the hand sanitizer
Gluten is a protein, not a germ. Sanitizer kills bacteria and leaves the protein sitting there. Soap and water physically remove it. Wash.
The two-diet household
Not everyone can go fully gluten-free at home, and that is okay. A shared kitchen works when the system is clear.
If you have young children with celiac, or a family member who is very sensitive, I would push toward a gluten-free house. Not because half measures never work, but because kids cannot manage risk the way adults can, and every parent I know who made the switch said the peace was worth it.
If you are keeping both, then separate the storage, separate the prep space, separate the porous tools, and make the rules visible on the wall. Do not rely on everyone remembering.
Out in the world
Dining out and travel
You are going to eat away from home again. Here is how to do it without gambling.
Before you go
- Call between 2pm and 4pm, when the kitchen is not slammed. Ask for a manager or a chef.
- Ask this exact question: "I have celiac disease. How does your kitchen handle a celiac order?"
- Listen for the details. A good answer mentions a clean pan, changed gloves, a separate prep area, or a dedicated fryer. A bad answer is "oh yeah, we have gluten-free stuff."
- Look at the whole menu, not the gluten-free menu. A steakhouse or a grill is often safer than a place with a printed gluten-free page and a shared fryer.
- Eat early. Fewer covers means a calmer kitchen and more care.
Red flags on any menu
- Anything fried, unless they confirm a dedicated fryer
- Soups, gravies, and sauces thickened with a roux
- Scrambled eggs and omelets (pancake batter shares the griddle, and some kitchens add batter to eggs)
- Grilled anything cooked on the same surface as buns and marinated meats
- Pasta boiled in shared water, even the gluten-free kind
- Soy sauce, teriyaki, hoisin, and most Asian marinades
- Seasoned or blackened proteins, house spice rubs
- Salad with croutons picked off. Picking them off does not undo it. Ask for a fresh salad.
- Anything described as "crispy"
The restaurant card
Screenshot the one you need and keep it in your photos. Hand it to your server and ask them to show it to the chef. It works better than a speech, and it works even when you are tired or nervous.
I have celiac disease
Eating even a crumb of wheat, barley, or rye will damage my small intestine and make me seriously ill. Thank you for helping me eat safely.
Please make sure that:
- My food does not contain wheat, barley, rye, malt, soy sauce, or flour of any kind.
- My food is not fried in oil that has cooked breaded items.
- My food is cooked in a clean pan on a clean surface, not the shared grill.
- Clean gloves and clean utensils are used for my order.
- Nothing is thickened with flour, including sauces, gravies, and soups.
Simple and safe: plain grilled meat or fish, steamed vegetables, plain rice or a baked potato, oil and vinegar on the side.
If you are not certain, please tell me. I would much rather know.
Tengo enfermedad celíaca
Comer aunque sea una migaja de trigo, cebada o centeno daña mi intestino delgado y me enferma gravemente. Gracias por ayudarme a comer con seguridad.
Por favor asegúrese de que:
- Mi comida no contenga trigo, cebada, centeno, malta, salsa de soya ni harina de ningún tipo.
- Mi comida no se fría en aceite donde se hayan cocinado alimentos empanizados.
- Mi comida se cocine en un sartén limpio sobre una superficie limpia, no en la plancha compartida.
- Se usen guantes limpios y utensilios limpios para mi orden.
- Nada esté espesado con harina, incluidas salsas y sopas.
Sencillo y seguro: carne o pescado a la parrilla sin adobo, verduras al vapor, arroz blanco o papa al horno, aceite y vinagre por separado.
Si no está seguro, por favor dígamelo. Prefiero saberlo.
Traveling
Packing
- Pack more food than you think you need. Delays are when people get desperate.
- A small immersion heater or a hotel kettle turns instant oats, rice cups, and soup into a meal.
- Request a room with a fridge and a microwave. Most hotels will do it if you say it is medical.
- Solid food goes through airport security. It is liquids that get you.
Countries where it is easier
Italy screens children for celiac routinely and awareness is genuinely high. Spain, Argentina, Ireland, the UK, Australia, and much of Scandinavia have strong national coeliac societies and clear labeling. Mexico is improving, and speaking Spanish helps enormously.
Countries where you need to work harder
Anywhere soy sauce is the base of the cuisine, anywhere bread is served as an act of hospitality you are expected to accept, and anywhere the words for wheat and flour do not translate cleanly. Bring a translated card, and learn to say the words for wheat and flour in the local language before you go.
When you get glutened anyway
It happens to everyone. It is not a moral failure and it is not the end of your progress.
- Hydrate. Water, broth, electrolytes.
- Rest. Cancel what you can. Your body is doing something hard.
- Eat simply for a few days. Cooked, soft, warm, mild.
- Write it down in the log so you can find the pattern later.
- Be gentle with yourself. Shame does not heal villi.
There is nothing that undoes a gluten exposure. Any product that claims to is selling you something. The only fix is time.
Find your people
Support groups
The single best predictor of whether someone does well with this is whether they found other people who get it. Do not skip this part.
Start with us
Follow Celiac Shack on Facebook for what actually works, what is safe right now, and answers to the questions everybody asks in the first month. And if you have a question of your own, send it to me directly. I read every one.
Tap a region to open it. These are the established national organizations, which is where you find local chapters, verified restaurant lists, and in-person meetups.
Add your group
Know a good local group that is not listed? Send it to me and I will add it. This directory grows from the community.
Cook
Recipes
254 recipes, all gluten-free, all real food. Searchable, filterable, and the serving sizes scale.
The Celiac Shack Kitchen
Seventeen sections covering breakfast, breads, mains, soups, sides, ferments, condiments, and desserts. Search by ingredient, filter by what you have, scale any recipe up or down for the size of your table.
Everything in it is built on the way I actually cook. Real food first, clean ingredients, coconut aminos instead of soy sauce, no pork or shellfish, and nothing that requires an ingredient you cannot find in a normal grocery store.
Five meals worth learning first
If you learn nothing else in your first month, learn to make five meals cold. Not from a recipe. From your head. It is what carries you through the tired nights when takeout would be a risk.
- A sheet pan dinner. Protein, vegetables, olive oil, salt. One pan, 400 degrees, done.
- A pot of soup. Onion, garlic, broth, vegetables, whatever protein you have. Freezes well.
- Eggs, done properly. Scrambled, fried, or as an omelet with whatever is in the fridge.
- A rice bowl. Rice, a protein, something roasted, something raw, a sauce you trust.
- One good breakfast. Because the mornings you do not have a plan are the mornings you eat something you should not.
Read
Books and shop
Everything I have written, and a little swag that helps fund the education work and my family's Lyme treatment.
Get told when ENOUGH is out
No spam, no daily emails. I will let you know when the book is ready and send you a chapter early.
Celiac Shack swag
The little shack with the gold heart, the butterfly, and the Faith over Lyme design with the lime-green ribbon. Every order helps fund my family's Lyme treatment and keeps the free education here free.
Community
You are not doing this alone
I have been gluten-free since 1999 and writing here since 2008. I have taught over a thousand wellness classes in two languages. Ask me anything.
Ask Steffi
Send me your question. I read every one. If it is something a lot of people are asking, I will answer it for the whole community so it helps more than one person.
I cannot diagnose you, prescribe for you, or tell you what to do about a specific medical situation. That belongs with your doctor. But I can tell you what I have learned, what I would look into, and what questions to bring to your appointment.
Where to find me
Work with me
Coaching
Three levels, depending on how much hand-holding you want. From a single get-me-started session to walking with you through the first several months.
See the optionsSpeaking and classes
Six signature topics, taught in English or Spanish, for congregations, community groups, clinics, and conferences. In person or online.
Booking and topicsEspañol
Recursos en español
He enseñado más de mil clases de bienestar en inglés y español. La tarjeta para restaurantes de esta app está en ambos idiomas, y hay más recursos en español en el sitio.
Si necesita ayuda en español, escríbame. Con mucho gusto.
Ver recursosI have watched people walk into this diagnosis grieving and walk out of it three years later healthier than they have ever been in their lives. Not because the disease was a gift. Because they finally knew what was wrong, and knowing is where healing starts.Steffi
Private
Glutening log
Write down what happened and how you felt. Over a few months the patterns show up, and the patterns are what tell you where the leak is.
Add an entry
Your entries
Bringing this to a doctor
A written log is taken more seriously than a description. If you are still having symptoms after several months of being careful, bring this to your appointment and ask about these possibilities:
- Ongoing low-level cross-contact you have not identified yet
- A follow-up antibody test to see whether the numbers are actually coming down
- Lactose intolerance while the gut heals
- Small intestinal bacterial overgrowth
- Microscopic colitis or another overlapping condition
- Untreated deficiencies, especially iron, B12, and vitamin D
- Whether a repeat biopsy makes sense to check healing
This is a list of questions to ask, not a list of things you have. Your doctor sorts that out.
About
Why this app exists
I went gluten-free in 1999, back when the word celiac got you a blank stare at the pharmacy and a gluten-free loaf of bread cost nine dollars and tasted like a sponge. There was no app. There was no aisle. There was a photocopied handout and a lot of guessing.
I started writing at Celiac Shack in 2008 because I kept meeting people who had just been diagnosed and handed nothing. A pamphlet, maybe. A list of foods to avoid, printed in six-point type, with no explanation of why malt matters or what a shared fryer does to you.
That gap has never really closed. The products got better. The awareness got better. But the moment right after diagnosis is still lonely, and it is still confusing, and people still walk out of the doctor's office holding a pamphlet and a whole new life they did not ask for.
This app is what I would hand someone in that parking lot.
It is not a substitute for your doctor, and it is not a promise that any of this is easy. It is a set of straight answers, a place to start, and a reminder that thousands of people have walked this exact road and are doing fine on the other side of it.
You did not do anything to cause this. You did not eat wrong or think wrong or fail at anything. Your body has an autoimmune condition with a known trigger and a known treatment, and you now know what it is. A lot of people never find out.
That is not nothing. That is actually everything.
Steffi
About Steffanie England
Nutritional Herbalist, wellness educator, and the writer behind Celiac Shack. Gluten-free since 1999, writing here since 2008, and has taught more than a thousand wellness classes in English and Spanish across six countries. Mother of five. Based in Utah.
More at celiacshack.comMedical disclaimer. The content in this app is for general education only. It is not medical advice, diagnosis, or treatment, and it does not replace care from a licensed physician. Statements have not been evaluated by the Food and Drug Administration. Nothing here is intended to diagnose, treat, cure, or prevent any disease. Celiac disease requires proper medical testing and ongoing physician-supervised care. Do not remove gluten from your diet before testing. Do not stop or start any medication, supplement, or treatment based on anything you read here.
Food safety disclaimer. Ingredient lists, formulations, and manufacturing practices change without notice and vary by country. Every safety judgment in this app is general education about how an ingredient is typically made, not a statement about any specific product. You are responsible for verifying every label yourself and for confirming with the manufacturer when you are unsure.
Affiliate disclosure. Some links in this app are affiliate links, including Amazon Associates. If you purchase through them I may earn a small commission at no additional cost to you.
Directory disclaimer. Support groups and organizations listed here are independent of Celiac Shack. Their inclusion is not an endorsement of any medical advice given within them.
© Celiac Shack. All rights reserved.
Faith over fear. Joy over restriction.